A Real Day for a Special Needs Mom

Unless you are a mom or dad to a special needs child with a communication issue, you just don’t quite understand the fun that we have with our little ones, their frustration, and our level of patience.

Here is just a small glimmer (15 seconds, as a matter of fact) into my life. What you don’t get to experience is being trapped in a car with this for almost 2 hours. At least he got quiet when we got out of the car and went into stores.

Kids can have all sorts of issues that affect them ~ sensory defensiveness, speech delays, gross and/or fine motor skill troubles, learning delays, and many more. My boys have had to go through even more therapy than my daughter who has gait instability, walks with a walker, and uses a power chair for distance! When you have a child with sensory processing issues, it’s a whole different world all on it’s own.

Because our therapy sessions back in August began with so much sensory developing exercises, we, unfortunately, re-enforced the wrong communication because we were trying to relieve frustration. Now that the boys are almost 3, they are having to learn how to “officially” communicate all over again. Needless to say, some days, this is what we get.

I share this with you for one main reason: never judge a book by it’s cover. Don’t assume everyone always has their life together. Never assume that the life of anyone around you is easier than yours. Don’t envy others for what they have and what you don’t have.

We are all blessed. We all have troubles in this life that must be overcome. We are all working to be something and do something greater!

For now… I’m just trying to make it through this day!!

Do you have any days like this? Please tell me I’m not the only one! Share your fun, stressful days in a comment below. It’s nice to know we aren’t alone!

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 A Real Day for a Special Needs Mom

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JessBio200 A Real Day for a Special Needs MomJessica Stone is a wife, mom to 4, and owner of her own businesses in the fitness and essential oils industries. She has 3 special needs children, one which has an undiagnosed neuro-muscular condition that limits her mobility, and her twins are currently receiving therapy for sensory defensiveness, physical mobility, fine motor skills, and speech. She enjoys sharing what she has learned through her trials, experience, research, and tools that have helped her children’s health with other parents who are looking for support, encouragement, and helpful information. Get her FREE gift to you, 30 Easy Snacks Your Kids Will Devour: Eating Healthy Never Got So Simple, to help you feed your kids quick & healthy! Connect with Jess live today on Facebook!

A Real Day for a Special Needs Mom

7 thoughts on “A Real Day for a Special Needs Mom

  1. Penny says:

    Grace Grace and more Grace on you Jessica. God has chosen a special mom for His and your special child! I dont have these issues, but I do have issues with my daughter because of emotional and physical abuse by her father and the grace of God is something I ask for daily to deal with the issues of life. I want to encourage you, and know that you are not alone in your struggles, God is with you and has already given you and your family victory! Prayers to you!

  2. You are certainly not the only one, Jess. We are all fighting our own battles and walking the walk of faith. Praise God that He has overcome the world and we have a hope for our future and the future of our kids and grand kids! Love you much!

    1. You, of all people, know Andrew just as much as I do… and I know you are fighting battles, too. Aren’t you thankful we are all blessed with friends and family who can help us through our battles to the victories on the other side? Love you, too!

  3. Jessica, what do you do for stress relief?? Being a parent of little ones is tough as it is without the additional challenges. All I can imagine is how God must have felt when he looked at you to be their mom… how much LOVE you have to give! But I hope you are receiving tons of love, too. Sending you a huge hug and thanking you for sharing a glimpse into your day!

    1. Thanks for asking about me, Susan! Fortunately, I have a good group of girlfriends that I’m able to go out with every couple of months, as well as going out on date nights with my hubby once the kids are in bed (and grandparents are available). I also rest every Saturday from all work, including housework, so I don’t have extra responsibilities those days (easier to enjoy the kids when my plate isn’t full). Also, every Sunday, my hubby takes the older 2 kids to a playground while the twins nap, so I get free time for a few hours. It’s nice. Of course, I keep my essential oils handy for right when I need them (I can’t seem to get enough of Valor!!). Again, thanks for asking!

  4. I remember when you told me the first time that you had children who have special need that I didn’t give it much attention, but wen you started talking about more and more, it dawned on me how serious it is. Like you say, we who have no idea what it is that you go though when you are in your car or when you are at home. I honor you for what you do Jessica, I really do. Blessings to you!

    1. Thanks, Olga! You bring tears to my eyes. It’s a lonely road because most people i know have kids with either the usual trouble of grades, behavior, etc., that just goes along with training kids up or have much lighter symptoms. Fortunately, I have recently found a group of moms through Facebook that’s really understanding and some are going through much worse illnesses than we are! Because of the loneliness associated with special needs, as well as the hard time we have had doing all the research on getting help on our own, I have started this site so other families won’t have to go through all the time and difficulties that we have and to learn what great things, like a sauna cleanse, healthy foods, and essential oils, have worked for our family! I also want to provide a place of community for special needs families, so they know they aren’t alone. Thanks again for your encouragement!!

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